Brodyn's Story
Meet Brodyn
Brodyn was born April 2, 2008. Although he was very lethargic shortly after birth and had trouble feeding, the doctors were not too concerned and thought it was jaundice. He began to improve and gain weight so no one gave it a second thought and we joyfully went home together. With the exception of gross motor delays and his continued lethargy, Brodyn seemed to be developing like a typical child. We were told to have patience, all children develop in their own time…
February 15, 2009, Brodyn was 10 months old. I walked into his room to wake him, and he was unresponsive. He was limp and could not open his eyes. His Father and I could not wait for the ambulance so we took him to Akron Children’s hospital and within moments, Brodyn stopped breathing and began having uncontrollable seizures. After life saving measures and God’s Grace, Brodyn was admitted and the testing began. 8 days and many seizures later, they still had no answers but the neurologist thought he was stable enough to go home and we were scheduled to see a geneticist in the next few days. It was there that we received the news that Brodyn had NKH. At 10 months old, we were told that our sweet boy might not live to be 1 year old… We were told that if he did survive, he would never sit up, crawl, walk or talk…
Brodyn and God had other plans. Brodyn sat up on his own at 16 months old, crawled at 18 months, and Brodyn walked 3 days before Christmas at 3 years old! Brodyn’s current challenges are speech, gross and fine motor skills, and cognition. He is a hard worker and attends speech, physical, and occupational therapy weekly. He also has attended horse therapy for children with developmental disabilities, aqua therapy, music therapy and more! He participates in The Challenger Baseball League and he is truly inspirational!
