Brodyn’s Friends is a 501c3 charitable organization that gives caring people like you the opportunity to make an immediate difference in the lives of children and their families affected with Non ketotic Hyperglycinemia (NKH). The organization was created when we, an everyday family in Ohio, were blessed with a child with NKH. While navigating through our new diagnosis, we realized that there was very little attention being paid to this rare and currently incurable illness and certainly very little research being done to help make sure that our little boy Brodyn as well as all the other children affected would hopefully survive but also thrive in their own special ways.

The name of our organization, Brodyn’s Friends, was chosen carefully. Due to what is known as a Novel Gene, Brodyn is not as severely affected as some of the other children. So from Brodyn’s Father’s point of view, the name of the organization to him was that since Brodyn might be stronger than the other kids, he would fight hard for them as they might not be able to fight for themselves. As a Mother, when you are told that your child has a disease that will affect them in such a profound way, the first thing I thought of was how would Brodyn ever make friends. So, this was our way to make sure that Brodyn would have all the friends he needed and that the other children would always have a friend in him that will never stop fighting for them.

For more information about NKH and Brodyn's Friends, please visit our navigation above.


Golfing for a Cure

Golfing for a Cure was held at Rosemont Country Club on October 8th, 2012. Thanks to all that participated, it was a huge success! We raised just shy of $12,000 to research a cure and better treatment options for NKH. We are already preparing for next year's event to be held on Monday July 15th, 2013, so please mark your calendars now!

2nd Annual Texas Hold 'Em Poker Tournament Saturday Feburary 23,2013

Please join us for our Second Annual Poker Tournament! When: Saturday February 23, 2013. Doors open at 4:30pm and play starts at 5:30pm. Where: St. Sebastian Church, Zwisler Hall, 500 Mull Ave. Akron, Ohio 44320. What: Deep Stack Poker Tournament, $55.00 Buy in includes 5000 starting chips, Food, and Non alcoholic drinks. A pre-tournament 1000 chip add on is available for only $10.00, 20 Minute Blinds, and Unlimited Re-buys in the first hour. We are also having a 50/50 raffle and a chinese raffle with some great items to choose from! For more info or to reserve your spot, email Heidi at We look forward to seeing your there!

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