How can you help?

You can donate Money, resources, time, or all three. Our immediate goal is to raise $1 million dollars by the end of 2017. To make a donation, contact us directly at or 330-414-9949. To donate your resources or your time, please contact Heidi at the contact information above. We are always looking for great volunteers and resources for one of our many Brodyn’s Friends events.

Where does the money go?

Currently, all of the money raised will go directly to researching a cure. Dr. Johan Van Hove, MD, PHD is the leading researcher for NKH and we have partnered with him and his team in Denver. We have incredible confidence in the work that he is doing for our children. In the event that we have created so much awareness that other researchers are working on this illness, we will evaluate that research carefully and thoughtfully to make sure that all of the money donated is going to the right place so that our vision of a cure is achieved.

Please take 5 minutes - Make the Difference! Do what you can!
Be part of finding the cure!